The Steering Committee will meet six times between July and December 2026 to draft the consortium’s governance charter — the document that will define the CPRP’s structure, decision-making processes, and operating procedures, with PFIC patient and family priorities embedded throughout. The first meeting will take place in-person at the 2026 PFIC Family & Scientific Conference (Chicago, July 9–10), which also includes an activity where patients and parents will share their perspectives on participating in research studies. Findings from the activity will inform the consortium’s research agenda in 2027. Stay tuned for updates.
JULY - DEC 2026